Andy Wadsworth is raising money for Rett Syndrome Research UK by walking the Ridgeway, an ancient pilgrimage site. He’ll be walking 86 miles alone, camping with a bivvy bag and cooking one meal a day.
Rett Syndrome effects young female children. Imagine the symptoms of autism, cerebral palsy, epilepsy and severe anxiety disorders all developing inexorably in one little girl…
Rett Syndrome is the most physically disabling of the autism spectrum disorders. It strikes at random in early childhood, and parents watch their daughters lose their developmental milestones and slide into a life of helplessness and pain.
There is no treatment beyond supportive, and often ineffective, measures such as feeding tubes, bracing, orthopedic and GI surgeries, and medications for anxiety and seizures. First recognized only 25 years ago, the prevalence of Rett Syndrome equals that of Cystic Fibrosis, Huntingtons and Motor Neurone Disease but is vastly underfunded in comparison to those disorders.
Many girls live into adulthood, requiring total, 24-hour-a-day care.
The Rett Syndrome Research UK Trust is funding very promising research that may soon provide a cure for this distressing and diminishing syndrome.
If you have loved a little girl in your life, please support Andy by giving to the trust.